Sara Fagan
Research Officer
Kalwun Development Corporation LTD
Sara Fagan, a Djabugay-Yirrganydji woman now studying in Yugambeh country. Fagan is currently a casual research officer for Kalwun's Health Service, the Community Controlled Aboriginal and/or Torres Strait Islander Medical Service located in the Gold Coast. Fagan is also a full-time clinical-year medical student, based between Yugambeh and Meeanjin.
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Community-controlled health data: Consent, trust and Indigenous data sovereignty
Why Indigenous Data Sovereignty matters in community-controlled healthcare.
Understanding community expectations around consent, data sharing and the use of health information.
Balancing opportunities for improved healthcare, research and service planning with community control and governance of data.
Lessons from Kalwun's research project that may support other ACCHOs and ACCOs seeking to strengthen their own approaches to data governance and community engagement.
Lillian Dullat, Research Officer, Kalwun Development Corporation LTD
Sara Fagan, Research Officer, Kalwun Development Corporation LTD